306
Participants
Start Date
August 23, 2018
Primary Completion Date
September 30, 2022
Study Completion Date
March 31, 2025
Coaching
Parents will interact and communicate regularly with a coach in person or by telephone. Coaches will be responsible for: identifying developmental concerns, proactive health promotion, guidance and training for developmental stimulation, parent support and education about child development, navigation of the health care system and self-management techniques. The frequency of coaching will be: once a month (minimum), for 18 months, at an average of 2.5 hours per month.
Online parent education
Parents will be provided access to an online platform which will provide educational resources and access to parent-parent support. Online resources on child development are curated by researchers and representative of parent groups, and linked to this online platform. The themes covered in the online tool include resources on child development, accessing health care services and managing emotions and family dynamics. These topics range from: practical tips for managing day-to-day challenges, strategies to cope and support the child's transitions from one stage to another, practical tips when looking for developmental services for the child: knowing where and how to access services.
Online peer support
Parents will have access to a secure online social media tool to connect to other parents going through a similar experience. Through this tool, parents can help support each other, and share their experiences and knowledge. This will put each family at the centre of each network (family, friends, health providers), allowing family networks to link with one another. Families will be able to find resources, create connections with the coach, health providers and other families, thus creating a network to support one another.
Child Health BC, BC Children's Hospital, UBC, Vancouver
Specialized Services for Children and Youth (SSCY) Centre, Winnipeg
Izaak Walton Killam (IWK) Health Centre, Halifax
Research Institute of McGill University Health Centre, Montreal Children's Hospital, Montreal
Canadian Institutes of Health Research (CIHR)
OTHER_GOV
University of Alberta
OTHER
McGill University Health Centre/Research Institute of the McGill University Health Centre
OTHER