292
Participants
Start Date
August 1, 2019
Primary Completion Date
March 31, 2025
Study Completion Date
August 31, 2025
Step 1: Semi-structured Interviews
"1. Cover SDMs' experience around:~ * withdrawal of life sustaining therapies~ * organ donation among those who were approached (including with the medical team and the organ donation organisation)~ * understanding of the situation~ * views on any gaps in the quantity or quality of information and discussion they received concerning their loved one's end-of-life care or donation process~2. Explore factors they perceived to influence their decision to consent to organ donation or not (or that would have influenced their decision for those not approached), and how such factors may have changed over the course of making this decision and since the decision (or since the event for those not approached)."
Step 2: National Telephone Survey
Explore SDM's beliefs and experiences around end of life and assess which beliefs are associated with the decision taken at the end of life, including decision to donate organs or not (and the strength of this association)
Foothills Medical Centre, Calgary
Winnipeg Health Sciences Centre, Winnipeg
Queen Elizabeth II Health Sciences Centre, Halifax
The Ottawa Hospital, Ottawa
Centre Hospitalier de l'Université de Montréal (CHUM), Montreal
CHU de Québec - Université Laval, Québec
Centre Hospitalier Universitaire de Sherbrooke, Sherbrooke
Hamilton General Hospital, Hamilton
London Health Sciences Centre, London
Collaborators (1)
Canadian Institutes of Health Research (CIHR)
OTHER_GOV
Ottawa Hospital Research Institute
OTHER
Centre hospitalier de l'Université de Montréal (CHUM)
OTHER