Understanding Decision Making in the Intensive Care Unit: a National Study

Active, not recruitingOBSERVATIONAL
Enrollment

292

Participants

Timeline

Start Date

August 1, 2019

Primary Completion Date

March 31, 2025

Study Completion Date

August 31, 2025

Conditions
Organ Donation
Interventions
OTHER

Step 1: Semi-structured Interviews

"1. Cover SDMs' experience around:~ * withdrawal of life sustaining therapies~ * organ donation among those who were approached (including with the medical team and the organ donation organisation)~ * understanding of the situation~ * views on any gaps in the quantity or quality of information and discussion they received concerning their loved one's end-of-life care or donation process~2. Explore factors they perceived to influence their decision to consent to organ donation or not (or that would have influenced their decision for those not approached), and how such factors may have changed over the course of making this decision and since the decision (or since the event for those not approached)."

OTHER

Step 2: National Telephone Survey

Explore SDM's beliefs and experiences around end of life and assess which beliefs are associated with the decision taken at the end of life, including decision to donate organs or not (and the strength of this association)

Trial Locations (9)

Unknown

Foothills Medical Centre, Calgary

Winnipeg Health Sciences Centre, Winnipeg

Queen Elizabeth II Health Sciences Centre, Halifax

The Ottawa Hospital, Ottawa

Centre Hospitalier de l'Université de Montréal (CHUM), Montreal

CHU de Québec - Université Laval, Québec

Centre Hospitalier Universitaire de Sherbrooke, Sherbrooke

L8L 2X2

Hamilton General Hospital, Hamilton

N6A 5W9

London Health Sciences Centre, London

Sponsors
All Listed Sponsors
collaborator

Canadian Institutes of Health Research (CIHR)

OTHER_GOV

collaborator

Ottawa Hospital Research Institute

OTHER

lead

Centre hospitalier de l'Université de Montréal (CHUM)

OTHER