427
Participants
Start Date
November 25, 2020
Primary Completion Date
October 31, 2024
Study Completion Date
October 31, 2024
Receive an adult-onset result
Assess the psychosocial outcomes and the lived experience of MyCode pediatric participants and parents who have received an adult-onset genomic result.
Receive a pediatric-onset result
Assess the psychosocial outcomes and the lived experience of MyCode pediatric participants and parents who have received an adult-onset genomic result.
Control - No Result
Assess the psychosocial outcomes and the lived experience of MyCode pediatric participants and parents who have not received an adult-onset genomic result.
Geisinger, Danville
Lead Sponsor
National Human Genome Research Institute (NHGRI)
NIH
Geisinger Clinic
OTHER