NCT03789721View on ClinicalTrials.gov

Adrenoleukodystrophy National Registry Study

RecruitingOBSERVATIONAL
Enrollment

1,000

Participants

Timeline

Start Date

May 1, 2019

Primary Completion Date

February 28, 2030

Study Completion Date

February 28, 2030

Conditions
ALD (Adrenoleukodystrophy)AdrenoleukodystrophyCerebral Adrenoleukodystrophy
Interventions
OTHER

Medical Record Abstraction

Collect clinical and epidemiological data through medical record abstraction and self-reported questionnaire survey semi-annually.

OTHER

Biospecimen Sample Collection

Collect research samples, when feasible for those diagnosed with ALD.

Trial Locations (1)

55455

RECRUITING

Masonic Cancer Center at University of Minnesota, Minneapolis

All Listed Sponsors
lead

Masonic Cancer Center, University of Minnesota

OTHER

NCT03789721 - Adrenoleukodystrophy National Registry Study | Biotech Hunter | Biotech Hunter