148
Participants
Start Date
August 16, 2018
Primary Completion Date
December 31, 2024
Study Completion Date
January 1, 2025
Observational study to examine safety, tolerability, and effectiveness of SPINRAZA® prescribed as part of standard of care
This is an observational study of adult patients with SMA to examine the safety, tolerability, and effectiveness of SPINRAZA® (nusinersen) for up to 30 months.
One time survey
One time survey
New York University School of Medicine, New York
Georgetown University, Washington D.C.
Johns Hopkins, Baltimore
Children's Hospital of the King's Daughthers, Norfolk
Memorial Healthcare, Owosso
Washington University School of Medicine, St Louis
Houston Methodist Neurological Institute, Houston
Barrow Neurological Institute, Phoenix
University of Washington, Seattle
Massachusetts General Hospital-Harvard University, Boston
Montreal Neurological Institute and Hospital, Montreal
Washington University School of Medicine
OTHER