Mucopolysaccharidosis VII Disease Monitoring Program

RecruitingOBSERVATIONAL
Enrollment

50

Participants

Timeline

Start Date

January 29, 2018

Primary Completion Date

May 31, 2033

Study Completion Date

May 31, 2033

Conditions
Mucopolysaccharidosis VIIMPS VIIMPS 7Sly Syndrome
Interventions
OTHER

No Intervention

Access to any treatment is through authorized commercial use or available expanded access programs only and not as a part of this DMP.

Trial Locations (14)

10016

TERMINATED

New York University Langone Medical Center, New York

13005

RECRUITING

Centre Hospitalier Universitaire La Timone, Marseille

20010

RECRUITING

Children's National Health System, Washington D.C.

41013

RECRUITING

Hospital Universitario Virgen del Rocío Pabellón Infantil, Seville

48109

RECRUITING

University of Michigan, Ann Arbor

55131

RECRUITING

Universitätsmedizin der Johannes Gutenberg-Universität Mainz, Mainz

60611

RECRUITING

Ann & Robert H. Lurie Children's Hospital of Chicago, Chicago

84112

RECRUITING

University of Utah Medical Center, Salt Lake City

92868

RECRUITING

Children's Hospital of Orange County, Orange

98105

RECRUITING

Seattle Children's Hospital, Seattle

C1425FNG

RECRUITING

Laboratorio de Neuroquimica Dr. N.A. Chamoles S.R.L., Buenos Aires

90035-003

RECRUITING

Hospital de Clínicas de Porto Alegre, Porto Alegre

3015 CN

TERMINATED

Erasmus University Medical Center Rotterdam, Rotterdam

4050-651

RECRUITING

Centro Hospitalar do Porto, Porto

All Listed Sponsors
lead

Ultragenyx Pharmaceutical Inc

INDUSTRY