320
Participants
Start Date
March 5, 2018
Primary Completion Date
June 30, 2027
Study Completion Date
December 31, 2027
FSHD-specific functional rating scale
The FSHD-COM is composed of disease-relevant functional tasks such as leg function; shoulder and arm function; trunk function, hand function, and balance.
Electrical Impedance Myography
EIM is a non-invasive, painless, and fast technique for obtaining information on how a patient's muscle structure is changing. EIM uses a small electrical current to measure the health of the underlying muscle. The patient will be asked to lie down and a trained clinical evaluator will perform testing on 16 total muscles (8 on each side) on your arms and legs.
COMPLETED
University of Rochester Medical Center, Rochester
RECRUITING
Centro Clinico NeMO, Milan
COMPLETED
Kennedy Krieger Institute, Baltimore
COMPLETED
Virginia Commonwealth University, Richmond
COMPLETED
The Ohio State University, Columbus
COMPLETED
University of Kansas Medical Center, Kansas City
RECRUITING
Institut de Myologie, Paris
RECRUITING
Ludwig-Maximilians-Universität München, München
COMPLETED
University of Utah, Salt Lake City
COMPLETED
University of California Los Angeles, Los Angeles
COMPLETED
University of Washington, Seattle
ACTIVE_NOT_RECRUITING
Chu De Nice, Nice
COMPLETED
Radboud Unviersity, Nijmegen
RECRUITING
University of College London - Queens Square, London
Collaborators (2)
National Institute of Neurological Disorders and Stroke (NINDS)
NIH
FSHD Society
OTHER
Friends Research Institute, Inc.
OTHER
Muscular Dystrophy Association
OTHER
AFM Telethon
UNKNOWN
University of Rochester
OTHER
Leiden University Medical Center
OTHER
Dyne Therapeutics
INDUSTRY
University of Kansas Medical Center
OTHER