BRCA Founder OutReach (BFOR) Study

Active, not recruitingOBSERVATIONAL
Enrollment

5,412

Participants

Timeline

Start Date

November 10, 2017

Primary Completion Date

May 10, 2026

Study Completion Date

May 10, 2026

Conditions
BRCA1 MutationBRCA2 Mutation
Interventions
OTHER

BFOR Digital Health solution/Web Portal

A digital health solution with Internet-based participant recruitment and ascertainment is a mechanism for distributing access to genetic testing to populations who might not otherwise have access. For this project, LifeLink will build a private web-portal designed by the PI's of the study as described in this protocol, including the wireframes that are in the appendices, that will enable secure contact between study participants and the participating commercial laboratory (Quest Diagnostics) and BFOR researchers, as well as facilitate contacts between study participants and their primary care providers and/or a list of BFOR study centers and BFOR providers.

Trial Locations (5)

10021

Memorial Sloan - Kettering Cancer Center, New York

90095

University of California, Los Angeles, Los Angeles

02115

Dana Farber Cancer Institute, Boston

02215

Beth Israel Deaconess Medical Center, Boston

19104-4283

University of Pennsylvania, Philadelphia

Sponsors
All Listed Sponsors
collaborator

Dana-Farber Cancer Institute

OTHER

collaborator

University of Pennsylvania

OTHER

collaborator

Beth Israel Deaconess Medical Center

OTHER

collaborator

Brigham and Women's Hospital

OTHER

collaborator

Breast Cancer Research Foundation

OTHER

collaborator

Quest Diagnostics-Nichols Insitute

INDUSTRY

collaborator

LIFELINK.COM INC

UNKNOWN

collaborator

University of California, Los Angeles

OTHER

lead

Memorial Sloan Kettering Cancer Center

OTHER