NCT03194178View on ClinicalTrials.gov

Impact of Phonatory and Facial Morphology Disorders, on the Quality of Life of Adolescents With Pierre Robin Sequence

CompletedOBSERVATIONAL

Enrollment

100

Participants

Timeline

Start Date

July 31, 2016

Primary Completion Date

July 31, 2019

Study Completion Date

July 31, 2019

Conditions

Pierre Robin Syndrome

Interventions

OTHER

Pierre Robin sequence patients

"4 questionnaires will be completed by the patient :~* Kidscreen 52 (generic quality of life questionnaire)~* Voice Handicap Index : VHI-9i (specific quality of life questionnaire)~* Child Oral Health Impact Profile : COHIP (specific quality of life questionnaire)~* MDI-C (composite depression scale for minors)"

Trial Locations (1)

Unknown

Necker - Enfants Malades hospital, Paris