NCT02626689 - To Document the Burden of Illness on the Quality of Life and the Impact on Healthcare Utilization in (Beta) β-thalassemia Subjects Who Are Transfusion Dependent (TD) and Non-transfusion Dependent (NTD) Receiving Standard of Care | Biotech Hunter

Enrollment

100

Participants

Timeline

Start Date

March 1, 2016

Primary Completion Date

January 3, 2017

Study Completion Date

January 3, 2017

Conditions

Beta-Thalassemia

Interventions

OTHER

Quality of Life (QOL) questionnaires

Monitoring of FACT-AN, SF-36V2, TransQol, and NTD PRO assessments,

OTHER

Healthcare Resource Utilization

Monitoring and reviewing HealthCare Resource Utilization information.

Trial Locations (5)

Cukurova University Medical Faculty Balcali Hospital, Çukurova

Faculty of Medicine Siriraj Hospital, Mahidol University, Bangkok

Aghia Sofia Children's Hosptial, Athens

Fondazione IRCCS Ca Granda Ospedale Maggiore, Milan

American University of Beirut Medical Center, Beirut