76
Participants
Start Date
March 31, 2014
Primary Completion Date
January 31, 2016
Study Completion Date
September 30, 2016
questionnaire survey
The HR-QOL PIDD survey will be administered to the patient by the site PI or the study coordinator. A second survey will be handed to the patient to take home with them and completed at 48-120 hrs. after the clinic visit. The study coordinator will contact the patient during this period to ensure that the patient completes this second survey and returns it to the local study site. A case report form (CRF) of their clinical condition and demographics will be collected at the time of informed consent.
Collaborators (1)
University of Virginia
OTHER
Boston Children's Hospital
OTHER
Baylor College of Medicine
OTHER
Johns Hopkins University
OTHER
Midwest Immunology Clinic
UNKNOWN
CSL Behring
INDUSTRY
University of South Florida
OTHER