Lymphatic Anomalies Registry for the Assessment of Outcome Data

RecruitingOBSERVATIONAL
Enrollment

1,000

Participants

Timeline

Start Date

June 30, 2013

Primary Completion Date

June 30, 2035

Study Completion Date

June 30, 2035

Conditions
Lymphatic MalformationGeneralized Lymphatic Anomaly (GLA)Central Conducting Lymphatic AnomalyCLOVES Syndrome"Gorham-Stout Disease (Disappearing Bone Disease)"Blue Rubber Bleb Nevus SyndromeKaposiform LymphangiomatosisKaposiform Hemangioendothelioma/Tufted AngiomaKlippel-Trenaunay SyndromeLymphangiomatosis
Trial Locations (1)

02115

RECRUITING

Boston Children's Hospital, Boston

All Listed Sponsors
collaborator

Lymphatic Malformation Institute

OTHER

lead

Boston Children's Hospital

OTHER