MIND: Care Coordination for Community-living Person With Dementia

NACompletedINTERVENTIONAL
Enrollment

300

Participants

Timeline

Start Date

August 31, 2014

Primary Completion Date

April 30, 2020

Study Completion Date

April 30, 2020

Conditions
DementiaCaregiver Burden
Interventions
BEHAVIORAL

MIND-S Intervention

MIND at Home is a home-based, care coordination that focuses on persons with dementia living at home and their family caregivers. Its goal is to help persons age in place safely while increasing quality of life. Delivered over 18 months, MIND systematically assesses and addresses unmet care needs of persons with dementia and their caregivers which are known to be linked to poor health and quality of life outcomes, and that put people at risk for long term care placement. The needs addressed in the MIND program cover a wide range of care domains, ranging from home and medication safety, to cognitive and behavior symptoms management, meaningful activities and legal considerations. The care team made up of a memory care coordinator, nurse, and physician. Patients and families receive care coordination assistance, resource referrals, dementia care education and behavior management skills training, emotional support and problem-solving, and home safety education

OTHER

Augmented Usual Care

Augmented usual care consists of an initial full in-home needs assessment for dementia-related needs and a written report that identifies unmet needs and provides recommendations for care sent to the participant and the primary care physician. Augmented usual care participants also receive an Aging and Caregiver Resource Guide that includes program and contact information for several local and national aging service organizations (e.g., Alzheimer's Association, Administration on Aging, Centers for Medicare and Medicaid). This condition likely exceeds the usual level of intervention in primary care settings

Trial Locations (1)

21224

Johns Hopkins University, Baltimore

All Listed Sponsors
collaborator

Thomas Jefferson University

OTHER

collaborator

National Institute on Aging (NIA)

NIH

lead

Johns Hopkins University

OTHER

NCT02396082 - MIND: Care Coordination for Community-living Person With Dementia | Biotech Hunter | Biotech Hunter