A Longitudinal Study of Hermansky-Pudlak Syndrome Pulmonary Fibrosis

CompletedOBSERVATIONAL
Enrollment

55

Participants

Timeline

Start Date

March 31, 2015

Primary Completion Date

October 15, 2019

Study Completion Date

October 15, 2019

Conditions
Hermansky Pudlak Syndrome
Interventions
OTHER

Pulmonary function test

Pulmonary function testing performed

OTHER

Chest CT

Chest CT scan to evaluate for pulmonary fibrosis

OTHER

Sample collection

Blood and urine sample collections

Trial Locations (5)

10032

Columbia University Medical Center, New York

19104

Children's Hospital of Philadelphia, Philadelphia

37232

Vanderbilt University, Nashville

60153

Loyola University Medical Center, Maywood

02115

Brigham and Women's Hospital, Harvard, Boston

All Listed Sponsors
collaborator

University of South Florida

OTHER

collaborator

National Institutes of Health (NIH)

NIH

collaborator

National Heart, Lung, and Blood Institute (NHLBI)

NIH

lead

Vanderbilt University

OTHER

NCT02368340 - A Longitudinal Study of Hermansky-Pudlak Syndrome Pulmonary Fibrosis | Biotech Hunter | Biotech Hunter