353
Participants
Start Date
October 31, 2012
Primary Completion Date
July 7, 2018
Study Completion Date
December 31, 2018
Patient Navigator
A specially trained (SCD knowledgable) Patient Navigator will act as a liaison who assists participants in increasing adherence to HU through disease education, addressing barriers to care and improving adherence to HU. PN utilize various techniques geared toward the individual patients needs. Interventions utilized by a PN include improving disease management skills, educational materials about disease, HU adherence, motivational interviewing, care coordination and social support.
Recruitment into Specialty Care
A specially trained (SCD knowledgeable) Patient Navigator will act as a liaison to participants in increasing adherence to Hydroxyurea. Interventions utilized by a PN include teaching disease management skills, addressing barriers to care, disease education, HU management, motivational interviewing, care coordination and social support.
Virginia Commonwealth University, Richmond
Eastern Virginia Medical School
OTHER
Children's Hospital of The King's Daughters
OTHER
Virginia Department of Health
OTHER_GOV
James Madison University
OTHER
National Heart, Lung, and Blood Institute (NHLBI)
NIH
Virginia Commonwealth University
OTHER