Medication Adherence in Youth With Sickle Cell Disease (SCD)

CompletedOBSERVATIONAL
Enrollment

36

Participants

Timeline

Start Date

May 31, 2014

Primary Completion Date

May 31, 2015

Study Completion Date

May 31, 2015

Conditions
Sickle Cell Disease
Interventions
BEHAVIORAL

Demographic Questionnaire

At study enrollment, participants will complete a questionnaire to collect demographic information about the participant's family background, education and living situation.

BEHAVIORAL

Medical Adherence Measure Questionnaire

"At the two-month follow-up visit, participants will be asked to complete a questionnaire describing all medications prescribed for them, when they take their medications, how much medication they take each time, how many times during the week they missed taking or were late taking each medication, reasons why they missed or were late, and how they manage their medications.~In the case that a participant's clinic schedule is delayed greater than two months from the time of consent (e.g., missed appointment, change in clinic appointment frequency), procedures scheduled for the anticipated 2-month visit will take place at the participant's next clinic appointment."

BEHAVIORAL

Acceptability Questionnaire

"At the two-month follow-up visit, participants will be asked to complete a questionnaire about their perceptions of using the Wise electronic medication container.~In the case that a participant's clinic schedule is delayed greater than two months from the time of consent (e.g., missed appointment, change in clinic appointment frequency), procedures scheduled for the anticipated 2-month visit will take place at the participant's next clinic appointment."

Trial Locations (1)

38105

St. Jude Children's Research Hospital, Memphis

All Listed Sponsors
lead

St. Jude Children's Research Hospital

OTHER

NCT02143076 - Medication Adherence in Youth With Sickle Cell Disease (SCD) | Biotech Hunter | Biotech Hunter