Improving OutcoMes in the Pediatric to Adult Care Transition in Inflammatory Bowel Disease

NACompletedINTERVENTIONAL
Enrollment

150

Participants

Timeline

Start Date

July 31, 2014

Primary Completion Date

November 30, 2017

Study Completion Date

December 31, 2017

Conditions
Inflammatory Bowel DiseaseCrohn DiseaseColitis, Ulcerative
Interventions
BEHAVIORAL

Telephone and email correspondence with an Inflammatory Bowel Disease Nurse

"The IBD pediatric-adult transition nurse will send an email each month containing:~Brief Questionnaire: A link to a secured website will be provided where participants will respond to a questionnaire.~Direct Nurse Contact: Telephone and email correspondence with an Inflammatory Bowel Disease Nurse~Educational module: Every other month, we will include in the email another link to an optional educational module that will be part of a curriculum to facilitate transition readiness.~MyHealth Passport~Study Questionnaire: A personalized link to a more comprehensive study questionnaire similar to the baseline questionnaire will be emailed in the 6th and 12th (final) email."

BEHAVIORAL

Minimal Intervention Arm

Patients randomized to the control group will have receive email based questionnaires and information relating to the MyHealth Passport application. This intervention is not expected to significantly improve outcomes.

Trial Locations (3)

L8N 3Z5

McMaster University Medical Center, Hamilton

M5G 1X5

Mount Sinai Hospital, Toronto

M5G 1X8

The Hospital for Sick Children (SickKids), Toronto

All Listed Sponsors
collaborator

Crohn's and Colitis Foundation

OTHER

lead

Mount Sinai Hospital, Canada

OTHER

NCT02085083 - Improving OutcoMes in the Pediatric to Adult Care Transition in Inflammatory Bowel Disease | Biotech Hunter | Biotech Hunter