214
Participants
Start Date
September 30, 2014
Primary Completion Date
August 8, 2017
Study Completion Date
August 8, 2017
Tailored Resources
Based upon PRISM screening tool results that identifies self-management barriers, patient/family will receive self-management resources matched to their barriers. These resources could be focused on: 1. Understanding and organizing care; 2. Motivation to self-manage; and 3. Family Teamwork. Group session of about 6 families with the same barrier will meet four times fo 75-minutes over a year, at the clinic site on same date as routine clinic visit.
Children's Hospital of Wisconsin, Milwaukee
University of Wisconsin - Madison, Madison
Medical College of Wisconsin
OTHER
University of Wisconsin, Madison
OTHER