Palliative Care in Spinal Muscular Atrophy (SMA) 1

NACompletedINTERVENTIONAL
Enrollment

39

Participants

Timeline

Start Date

June 30, 2012

Primary Completion Date

June 11, 2018

Study Completion Date

June 11, 2018

Conditions
Spinal Muscular Atrophy 1
Interventions
OTHER

Follow-up diary and questionnaire

A follow-up diary will be completed by the families and the different practitioners working with the patient. One year after the death of the patient, a questionnaire will be proposed to the parents of the child by a psychologist.

Trial Locations (1)

75015

Necker Hospital, Paris

All Listed Sponsors
collaborator

URC-CIC Paris Descartes Necker Cochin

OTHER

lead

Assistance Publique - Hôpitaux de Paris

OTHER

NCT01862042 - Palliative Care in Spinal Muscular Atrophy (SMA) 1 | Biotech Hunter | Biotech Hunter