289
Participants
Start Date
December 3, 2012
Primary Completion Date
November 30, 2015
Study Completion Date
November 30, 2015
Genetic Providers
Genetic providers (genetic counselors or nurses) will follow the standardized disclosure protocol for in-person and telephone disclosures whle completing a disclosure flow checklist.
Visual Aids
Visual aids targeted to facilitate communication of genetic test results were developed based on our preliminary studies and modified based on our initial pilot study.
Post-Disclosure Asessments
Within 72 hours of completion of disclosures, participants will be asked to complete post-disclosure survey again being the option to complete by the aforementioned means.
In-person Clinical Follow-Up
Participants who receive their test results in person will meet with a Physician, Physician Assistant or Nurse Practitioneras part of their in person disclosure session. Participants randomiZed to telephone disclosure will be recommendedto schedule an in-person clinical follow-up appointment with a Physician, Physician Assistant or Nurse Practitioner
6 Month and 12 Month Assessments
At 6 months and 12 months after disclosure participants will be asked to complete survey assessments.
Abramson Cancer Center of the University of Pennsylvania, Philadelphia
The John H. Stroger Jr. Hospital of Cook County, Chicago
The University of Chicago, Chicago
MD Anderson Cancer Center at Cooper, Camden
The Fox Chase Cancer Center, Philadelphia
Abramson Cancer Center at Penn Medicine
OTHER