305
Participants
Start Date
July 31, 2012
Primary Completion Date
April 30, 2016
Study Completion Date
June 30, 2016
Web-based coping skills training
This intervention comprises a 12-week interactive, multi-component, multimedia online training that consists of instruction in specific self-management strategies, disease education, and social support. The content is rooted in cognitive-behavioral principles of disease self-management. In addition to the web-based modules, the intervention consists of monthly telephone support for 3 months by a trained bilingual health coach (research nurse) to review material and help enhance motivation.
Online disease education
"The online disease education intervention provides access to an online resource center containing links to 12 educational websites about Juvenile Idiopathic Arthritis. Participants will be asked to review one educational website per week over the course of 12 weeks. Participants also will receive three monthly phone calls by a bilingual nurse health coach to discuss the participant's efforts at managing his/her disease."
Duke University Medical Center, Durham
Nationwide Children's Hospital, Columbus
Riley Hospital for Children, Indianopolis
Children's Mercy Hospitals and Clinics, Kansas City
Dell Children's Medical Center of Central Texas, Austin
University of California San Francisco Benioff Children's Hospital, San Francisco
The Children's Hospital at Legacy Emmanuel Medical Center, Portland
Seattle Children's Hospital, Seattle
Lurie Children's Hospital, Chicago
Joseph M. Sanzari Children's Hospital, Hackensack
National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS)
NIH
Children's Mercy Hospital Kansas City
OTHER