603
Participants
Start Date
October 6, 2011
Primary Completion Date
February 29, 2016
Study Completion Date
March 31, 2027
Observational-1
"Multiple questionnaires detailing family history, medical history, visual symptoms, smoking, environmental and dietary exposures.~Prospective photography of the retina to detect early ARM-related changes A saliva or blood sample for genetic testing."
Observational-2
"A limited number of questionnaires and prior clinical documentation from eye care professionals of eye status with respect to ARM.~No prospective retina photographs but ongoing follow-up for reported changes in ARM status.~A saliva or blood sample for genetic testing."
University of Pittsburgh, Pittsburgh
Jules Stein Eye Institute, Dept. of Ophthalmology David Geffen School of Medicine at UCLA, Los Angeles
Jules Stein Eye Institute
OTHER
University of Pittsburgh
OTHER
National Eye Institute (NEI)
NIH
University of California, Los Angeles
OTHER