Understanding the Psychosocial Needs of Parents Who Have Lost a Child to Cancer

Active, not recruitingOBSERVATIONAL
Enrollment

160

Participants

Timeline

Start Date

August 31, 2009

Primary Completion Date

June 2, 2027

Study Completion Date

June 2, 2027

Conditions
Parents Who Have Lost a Child to Cancer
Interventions
BEHAVIORAL

Questionnaires/Interviews

"Prior to the interview, the measure of prolonged grief disorder symptoms, the PG-13, will be re-administered to participants as a quality assurance check. We will administer 7 self-report measures, which participants can complete in our office, at home, or via telephone, depending on their preferences. These questionnaires should take approximately 75 to 80 minutes to complete. If you are asked to take part in the in-depth interview and you choose to take part, the interview that will take approximately 60 to 90 minutes to complete, depending on the length of the responses to the questions asked.~The participant may also be asked if they would be willing to fill out an additional questionnaire about parents' thoughts on the most appropriate timing for raising the topic of a postmortem examination and factors that are important to include in discussions. Despite its importance, autopsy is often not discussed with parents whose child is dying from cancer."

Trial Locations (2)

10065

Memorial Sloan Kettering Cancer Center, New York

Unknown

NCI Clinical Center, Bethesda

All Listed Sponsors
collaborator

National Cancer Institute (NCI)

NIH

collaborator

Dana-Farber Cancer Institute

OTHER

collaborator

Ohio State University

OTHER

collaborator

University of Memphis

OTHER

collaborator

University of Southern California

OTHER

lead

Memorial Sloan Kettering Cancer Center

OTHER