Retinoblastoma Survivor Study: Assessment of General Health and Quality of Life

RecruitingOBSERVATIONAL
Enrollment

1,000

Participants

Timeline

Start Date

March 11, 2008

Primary Completion Date

March 31, 2026

Study Completion Date

March 31, 2026

Conditions
Retinoblastoma
Interventions
BEHAVIORAL

Questionnaires

The survey will be administered by mail or telephone interview, based upon the participant preference. The survey has been adapted from the 2008 questionnaire being administered through the CCSS (11); it has been supplemented with questions addressing areas of interest specific to the retinoblastoma survivor population (eg, validated instruments that assess visual impairment).

Trial Locations (1)

10065

RECRUITING

Memorial Sloan Kettering Cancer Center, New York

All Listed Sponsors
collaborator

National Cancer Institute (NCI)

NIH

collaborator

St. Jude Children's Research Hospital

OTHER

lead

Memorial Sloan Kettering Cancer Center

OTHER