Multi-Organ Screening Recommendations in Patients With Lynch Syndrome

Active, not recruitingOBSERVATIONAL
Enrollment

1,530

Participants

Timeline

Start Date

December 31, 2004

Primary Completion Date

December 31, 2025

Study Completion Date

December 31, 2025

Conditions
Lynch Syndrome
Interventions
BEHAVIORAL

questionnaires, telephone interview, optional blood drawn

Initial CGS Visit (All Prospective Participants)Clinical assessment (screening, family \& personal history of CA, surgeries) 6 Month Follow-Up Phone Interview (Prospective) Follow-Up Questionnaire (prospective and retrospective) Retrospective Initial Interview Participants may also donate an additional blood, serum, saliva, urine, or stool sample for research, (in addition to the blood drawn for clinical testing) or for the sole purpose of research testing (in absence of clinical testing or prior external testing).

BEHAVIORAL

questionnaires, telephone interview and optional blood drawn

Initial CGS Visit (All Prospective Participants)Clinical assessment (screening, family \& personal history of CA, surgeries) 6 Month Follow-Up Phone Interview (Prospective) Follow-Up Questionnaire (prospective and retrospective) Retrospective Initial Interview Participants may also donate an additional blood, serum, saliva, urine, or stool sample for research, (in addition to the blood drawn for clinical testing) or for the sole purpose of research testing (in absence of clinical testing or prior external testing).

Trial Locations (8)

10065

Memorial Sloan Kettering Cancer Center, New York

10604

Memorial Sloan Kettering Westchester (Consent Only), Harrison

11553

Memorial Sloan Kettering Nassau (Consent only), Uniondale

11725

Memorial Sloan Kettering Cancer Center @ Commack (Consent Only), Commack

11788

Memorial Sloan Kettering Cancer Center Hauppauge (Consent Only), Hauppauge

07920

Memorial Sloan Kettering Basking Ridge, Basking Ridge

07748

Memorial Sloan Kettering Monmouth (Consent Only), Middletown

07645

Memorial Sloan Kettering Bergen (Consent Only), Montvale

All Listed Sponsors
collaborator

National Cancer Institute (NCI)

NIH

collaborator

Albert Einstein College of Medicine

OTHER

lead

Memorial Sloan Kettering Cancer Center

OTHER